eBooks - Miscellaneous - Miscellaneous - ICON Health Publications - The Official Parent's Sourcebook on Refsum Disease: A Revised and Updated Directory for the Internet Age
The Official Parent's Sourcebook on Refsum Disease: A Revised and Updated Directory for the Internet Age eBook
by ICON Health Publications
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Platforms
Windows 98SE+, Mac OS X+, Palm Features
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Download Now Price: $40.53
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The Official Parent's Sourcebook on Refsum Disease: A Revised and Updated Directory for the Internet Age Summary
| This sourcebook has been created for parents who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells parents where and how to look for information covering virtually all topics related to refsum disease, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on refsum disease. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Refsum Disease: Guidelines; Chapter 2. Seeking Guidance; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 3. Studies on Refsum Disease; Chapter 4. Books on Refsum Disease; PART III. APPENDICES; Appendix A. Researching Your Child's Medications; Appendix B. Researching Nutrition; Appendix C. Finding Medical Libraries; Appendix D. Your Child's Rights and Insurance; ONLINE GLOSSARIES; REFSUM DISEASE GLOSSARY; INDEX. Related topics include: Disorder of Cornification 11 (Phytanic Acid Type), DOC 11 (Phytanic Acid Type), Heredopathia Atactica Polyneuritiformis, Hypertrophic Neuropathy of Refsum, Phytanic Acid Storage Disease, Refsum Disease. |
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eBooks - Titles - Authors - Miscellaneous - Miscellaneous - ICON Health Publications - The Official Parent's Sourcebook on Refsum Disease: A Revised and Updated Directory for the Internet Age eBook